Owen is home tonight and we are anxiously waiting to see how he does tonight. When checking the hole today they were able to see pneumonia but he did not have a fever so they let him come home. Doctor told us to monitor his temperature and if it gets to 101 then bring him back and they will admit him. So far so good.
It is very obvious he does not feel well today. After dinner his temp was about 99 and we figured he would work it up until about 3am so it would be convenient.
Last night was horrible for Owen and it was hard to lay there and listen to him without taking him to ER. However, when Melissa arrived at KU Med this morning Owen did not cough or act like anything was wrong. I think the staff thought Melissa was "one of those moms".
So we wait and pray that tonight Owen sleeps well and gets back to his normal. The doctor did say that there is a chance it is not pneumonia and what the video showed is just the "stuff" he was hacking up and vomiting that went back down into his lungs. Hopefully this is the case.
Owen is scheduled to have another procedure on April 5 to stretch the esophagus and patch the hole again. Melissa begged to skip the patching and do the full operation to close the hole. The doctor did not agree and we will try again. Frustrating................... In addition he told us the full surgery is not 100% and could have to be repeated. I guess since Owen is two years old the body may not "heal" like we want it to. The full surgery is a major surgery and they would like to exhaust the patching and make sure the esophagus is dilated and staying open.
We have been talking tonight about what if nothing works? We can not imagine Owen having to live like this for his entire life.
Oh, I'm so sorry that this roller coaster ride is not over. Praying that Owen's esophagus is HEALED, once and for all!
ReplyDeleteI hope I can comfort you some - I DOUBT Owen will have to live like this forever. I, obviously, don't know how long this will go on but I'm sure that he will get better at some point. Gosh, I remember feeling that way with Sophie's issues - "will it be like this forever?" I was so fearful and it's exhausting -emotionally and physically. But, God is faithful!! It has been a slow process with her (and I know it's a different issue) but little by little she is progressing. I think that will happen with Owen, too! It just may be slow. Hugs to you all! Jim, the kids and I are continueing to pray!!
ReplyDelete